Why is my life about coping with chronic illnesses?

I frequently ask myself this question: why is my life about coping with chronic illnesses?

My senior year in high school 1998, I contracted Type 1 Juvenile Diabetes, or insulin dependent diabetes. Before you conclude that I was an overweight sloth who never left his couch, think again: I ran varsity cross country plus track and field. I wasn’t a star runner but I wasn’t coming in last every race either. I made conference honors once. I was 5′ 10″ 155 pounds (unfortunately to date I’ve gained a few extra 🙁 ).

Type 1 diabetes is a royal pain in the ass. I’m fortunate to be on pump therapy, which allows me a greater degree of freedom in my daily activities compared to someone on regular, lenti, or ultra-lenti insulin given intravenously. Still, my days are always locked into times when I MUST eat, times when I should have a snack, and juggling how much insulin to give myself with each meal. It’s actually come to the point where I just eat the same meals constantly, so I can maintain good control of my glucose levels. For the most part my diabetes is under control and I’m not suffering from any related side effects.

After I learned about my Type 1 diagnosis, I was shattered. Why did I have to get this disease? While classmates were celebrating their senior year, going to prom parties, and planning their future, I was in and out of the doctor’s office learning how to inject insulin into myself and getting educated on good diabetes control. I busted my ass in high school at everything I did, and felt getting diabetes was a huge slap in the face. At the time it felt like an insurmountable roadblock standing between me and having a decent life.

More than anything, I wanted someone to explain to me what the greater purpose of being saddled with this disease was. To date I have never heard a good explanation. F*ck God, he doesn’t work in mysterious ways. I hardly even think he/she exists. There, I said it.

Then I learned about my Borderline Personality Disorder. I exploded one night late in my Junior year at college and had to be put in the looney bin for a week. At first, learning about BPD gave me some moments of clarity: it explained my moods, depression, hopelessness, and inability to have normal relationships with people. In some ways it was a crutch that released some of the pressure building up behind my “why can’t I be normal?” valve.

Unfortunately for me, my symptoms have only slightly improved . Sure, I don’t try to harm myself anymore, but it has come at the expense of taking 4 different psychiatric medications for more than 10 years. If I so much as spend 5 days without one of the meds, I go into withdrawal and become completely useless. My previous blog below is an attempt to explain why I peed on the window of my apartment sleep walking due to Clonazepam withdrawal. Peeing on the window? At 32? Really?!? Is this what my life has deteriorated to?

BPD has also further complicated my relationships with family and what few friends I have. I’m partly lucky that I live far away from those I know best in my life, because that allows us plenty of breathing room and time to ourselves. My parents have had it with my BPD and don’t even speak of it anymore. They complain that they are old and tired. Tough sh*t: part of the reason I’m so miserable is because of the way I was raised. Like most psychiatric conditions, BPD comes from both genetic and environmental causes. They’re as much to blame as the sh*tty genes I have floating around in my body. My friends, well, they really don’t know the whole truth and even if they did, they wouldn’t understand.

When I combine my diabetes with my BPD, it’s easy to see I have a lot of excrement on my plate to deal with. I fight both conditions all the time and I never seem to get ahead. I’m almost to the point that I want my psychiatrist to hook me up to a machine and shock the hell out of my brain to get rid of it. ECT (Electroconvulsive therapy) may sound dramatic but a few brief moments of extreme discomfort to alleviate a lifetime of mental anguish sounds good to me.

As a result of all this, I am constantly trying to find the deeper meaning of my life. Old friends from high school – some who just skated by and hardly ever cared about a thing – are now happily married and have beautiful children to raise. One guy I knew in high school who was notorious for cheating on tests is now a millionaire and president of his own company, living in a seven figure beach house with 3 cars and a boat parked at the marina nearby.

Why in the f*ck can’t that be me? I can guarantee with 100% certainty that if he – or anyone else excelling as an adult I know – had the same diseases I have, he’d be shaving in the YMCA at 5 AM in the morning and asking for quarters on the corner. Then again, maybe their families would be more supportive than mine is and take better care of the children they are responsible for putting on this earth.

I see NO greater meaning to diabetes and BPD. It confounds me that I have to deal with the both of them at the same time. Sometimes I never leave my bed. Sometimes I feel like eating a handgun. Other times I get so mad that I break things, yell obscenities, and become destructive. Don’t worry, almost no one ever knows because I live alone in a quiet apartment house. I have no wife or children to care for so the stress is all on me.

Looking forward, I turn 33 this year. I’m actually doubting my qualifications to be married let alone raise children. Diabetes and BPD? “NO THANKS” says any potential partner, I don’t want my children to go through that hell, nor do I want to put up with a BPD spouse that will fight with me to my dying day. Not worth it.

My point exactly: NOT WORTH IT. Life with BPD and diabetes is almost pointless. I’m just waiting to die. Maybe then I’ll get some answers.

4 Replies to “Why is my life about coping with chronic illnesses?”

  1. Have you cpnsidered applying to social security for SSDI benefits?
    Your medical and mental health problems probably make you eligible.

  2. Hi Gary,

    Actually, no I haven’t yet. At the moment I’m living outside the country and not paying into Social Security. So, I’m not sure if I’d be eligible for benefits I’m not paying for.

    Definitely something to consider, though, it things get worse in the future.

  3. Hello there! I’m borderline + bipolar. I feel I have a curse and a sign that says “NO WORTH IT”. Sometimes my mother gets to say no guy will ever stand me, or even that no boyfriend of hers would be able to stand me. The every day life isn’t worth the pain, right? And I guess we stick around with the hope we will find someone to share our lifes with. I start to doubt if that would actually change something and I’ve started to think maybe I’m just obsessed with the idea to a blind and unhealthy point.

    I have been obsessed all my life, and the most happiest moment in it has been getting in my bed after school, covering myself up and masturbating for a little while, thinking about a very special person that would make love to me, and then staying in there for hours imagining how much he loved me and how our lifes went together. I could never say this last thing in therapy, or to anyone.
    Reading you made me feel I’m not the only one wondering if she can have kids or find someone who can stand her. Can you imagine? I thought I was the only one caring about things like that. Also I didn’t know there was someone out there who felt his life was not worth the effort for himself or the others. I keep feeling amazed I ran into your blog. I don’t know anyone who has the same I do, and the people I met in a support group were so weird to the point they made me feel too normal.

    I will keep reading you 🙂

  4. This post could have been written by my husband. I’m reading your posts from the earliest to most recent, and I hope that your last few posts will show some relief. No one should have to suffer with so much unfairness — you are right. Neither the diabetes nor the bpd are your fault, yet you are the one stuck with them for life. Sucks!

    My husband is beginning DBT therapy — have you tried that? (Not sure if you are still in Costa Rica or the states). It is supposed to be very good for bpd, and I desperately hope it helps him. Tami Green’s blog is a great offering hope of recovery. I realize bpd manifests differently in males and females and in each person. But you may find something helpful on her site.

    Again, I’m sorry you were dealt such a shitty hand. Good luck in your journey toward improved health and keep up the blog. It has helped me understand a great deal about what is going on with my husband.

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